top of page
PHOTO GALLERY
Infographics, images, and scans for vascular Ehlers-Danlos
What is Vascular Ehlers-Danlos Syndrome?
Here are some facts about vEDS. Feel free to share this with new vEDS patients, families and friends to help spread awareness of the disease!
Keys to Creating a vEDS Care Team
Some helpful hints to get your vEDS care team up and running. This infographic was made by FIGHT vEDS, the information used to create it was from the vEDS Collaborative conference in Seattle Washington July 2018.
Ways to Improve Outcomes
There are ways to improve outcomes in vascular EDS. Talk your physician about some of the ideas listed here.
Characteristic Facial Features in vascular Ehlers-Danlos Syndrome
These images show the spectrum of facial features which can be seen in vEDS. They highlight the fact that the severity of your underlying vEDS does not always correlate with your facial features. In other words, having (or not having) certain facial features does not necessarily help you predict how severe the disease is. Remember, vEDS is on a 'spectrum'. While all vascular EDS patients have the same disease, some people have more severe cases than others.
Picture A: a man with characteristic vEDS facial features including proptotic eyes (eyeballs are pushed forward more than normal), long and thin nose, minimal subcutaneous facial fat and a triangular shaped face.
Picture B: A young female with mildly proptotic eyes, and a long thin nose
Picture C: a man with down slanting palpebral fissures (the elliptical, open space between the eyelids). He also has characteristic facial findings of attached pinna (attached ear lobes) and thin lips.
Picture D: A female with a long thin nose, but otherwise normal facial features.
Source:Shalhub S, Black JH 3rd, Cecchi AC et al: Molecular diagnosis in vascular Ehlers-Danlos syndrome predicts pattern of arterial involvement and outcomes. J Vasc Surg 2014; 60: 160-169
Picture A: a man with characteristic vEDS facial features including proptotic eyes (eyeballs are pushed forward more than normal), long and thin nose, minimal subcutaneous facial fat and a triangular shaped face.
Picture B: A young female with mildly proptotic eyes, and a long thin nose
Picture C: a man with down slanting palpebral fissures (the elliptical, open space between the eyelids). He also has characteristic facial findings of attached pinna (attached ear lobes) and thin lips.
Picture D: A female with a long thin nose, but otherwise normal facial features.
Source:Shalhub S, Black JH 3rd, Cecchi AC et al: Molecular diagnosis in vascular Ehlers-Danlos syndrome predicts pattern of arterial involvement and outcomes. J Vasc Surg 2014; 60: 160-169
Translucent Skin
Images of a patient with vascular Ehlers-Danlos syndrome. Note the thin, 'translucent' skin which allows you to see the underlying veins on the chest.
Aneurysm in vEDS
Imaging of an internal carotid artery aneurysm in a vascular EDS patient
bottom of page