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NEW STUDY: vEDS patients are living longer, but unclear what role celiprolol plays

May 16, 20193 min read

NEW STUDY: vEDS patients are living longer, but unclear what role celiprolol plays

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Longer Life with vEDS: A Lesson from Marfan Syndrome

Nov 29, 20185 min read

Longer Life with vEDS: A Lesson from Marfan Syndrome

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The 4 Essential Elements of your vEDS Care Team

Sep 7, 20184 min read

The 4 Essential Elements of your vEDS Care Team

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A vEDS Confession...the 1st time I met another patient

Aug 9, 20183 min read

A vEDS Confession...the 1st time I met another patient

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7 Lessons from the vEDS Facebook Community

Jun 12, 20185 min read

7 Lessons from the vEDS Facebook Community

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FIGHT vEDS Version 2.0 Website Now Available!

May 25, 20182 min read

FIGHT vEDS Version 2.0 Website Now Available!

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The University of Washington and FIGHT vEDS ask patients to set the research agenda

Jan 31, 20182 min read

The University of Washington and FIGHT vEDS ask patients to set the research agenda

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Congress Attempts to Alter the Orphan Drug Tax Credit

Nov 13, 20173 min read

Congress Attempts to Alter the Orphan Drug Tax Credit

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5 Tips from Benjamin Franklin for vascular EDS

Aug 28, 20174 min read

5 Tips from Benjamin Franklin for vascular EDS

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Acer Therapeutics Obtains Exclusive License to Celiprolol Study Data

Dec 14, 20161 min read

Acer Therapeutics Obtains Exclusive License to Celiprolol Study Data

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